Links and useful addresses
Action for Dysphasic Adults
1 Royal Street
London
SE1 7LL
020 7261 9572
080 8808 9572 (Helpline)
020 7928 9542
speakability@speakability.org.uk
Advice, information and support for people with Aphasia, their families & carers. Telephone helpline, national directory of services and advocacy available at the National Office. Network of self help groups round the country supported by regional development advisers.
Action Against Medical Accidents
44 High Street
Croydon
CRO 1YB
0208 686 8333 Monday - Friday 10-12 a.m.
and 2-4 p.m.
020 8667 9065
admin@avma.org.uk
Action for Victims of Medical Accidents (AVMA) is an independent charity and the only organisation working exclusively for the victims of medical accidents. A “medical accident” is where avoidable injury has been caused as a result of medical treatment or failure to diagnose.
Alzheimer's Society
Gordon House
10 Greencoat Place
London
SW1P 1PH
020 7306 0606
020 7306 0808
enquiries@alzheimers.org.uk
The Alzheimer's Society is committed to maintaining, improving and promoting its unique knowledge and understanding of dementia. It seeks to define and develop quality in its care and core services, to reach out to and include all people with dementia, their families and the professionals who work with them and to work in partnership with other organisations that share its aims.
Association of disabled Professionals
BCM ADP
London
WC1N 3XX
020 8778 5008
02392 241420
AssDisProf@aol.com
The Association of Disabled Professionals aims to improve the education rehabilitation, training and employment opportunities available to disabled people, encourage disabled people to develop their physical and mental capacities fully, to find and retain employment commensurate with their abilities and qualifications, and to participate fully in the everyday life of society and To improve public knowledge and acceptance of the capabilities needs and problems of disabled people, particularly in relation to education and employment
Association for Brain Damaged Children
Clifton House
3 St Paul's Road
Foleshill
Coventry
CV6 5DE
024 7666 5450
A localised charity for the Coventry area concerned with the welfare of brain-damaged children and their families.
Association of Continence Advisers
Winchester House
Kennington Park
Cramer Road
London
SW9 6EJ
020 7820 8113
Association of Continence Advisers is a multidisciplinary group of health professionals with a special interest in helping incontinent people of all ages
Bodily Injury Claims Management Ltd (BICMA)
The Atrium ,
Curtis Road,
Dorking,
RH5 4TP
info@bicma.org.uk
BICMA looks into ways of improving standards of claims handling of personal injury claims by both lawyers and insurers. It recently facilitated the creation of the Case Management Society of the UK.
Brain Research Trust
15 Southampton Place
London
WC1A 2AJ
020 7404 9982
020 7404 9983
info@brt.org.uk
The Brain Research Trust is a totally independent medical research charity that was set up to support research at University College London, Queen Square, London, and the UK's most important centre of research into neurological diseases.
British Association of Brain Injury Case Managers (BABICAM)
PO Box 1800
Salisbury
Wiltshire
SP1 2XH
01722 328 309
The British Association of Brain Injury Case Managers is a professional body for Brain Injury Case Managers. Following a working party begun in 1990, the Association itself was launched formally in April 1996. It aims to represent the professional interests of case managers who are working with people who have survived a brain injury, particularly long-term, and to develop an ethical and professional structure for this discipline to develop and flourish.
British Epilepsy Association
New Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7XY
0113 210 8800
0113 391 0300
epilepsy@bea.org.uk
The British Epilepsy Association is exclusively concerned with helping people with epilepsy, their families and the professional working with them.
British Institute for Brain Injured Children
Knowle Hall
Bridgwater
Somerset
TA7 8PJ
01278 684 060
01278 685573
Working with parents and carers, BIBIC offers a valuable support system which offers time to talk, expert advice and practical help. The British Institute prescribes home treatment programmes for brain injured children which are carries out with the assistance of volunteer helpers. All assessments, reassessments and specialist treatment sessions are carried out at Knowle Hall in Somerset.
British Society of Rehabilitation Medicine
c/o Royal College of Physicians
11 St Andrew's Place
London
NW1 4LE
01992 638 865
01992 638 905
admin@bsrm.co.uk
The British Society of Rehabilitation Medicine is a learned society representing doctors who practice in Rehabilitation Medicine. It was formed in 1984 in the name of the Medical Disability Society and is a registered charity
The Calvert Trust
Calvert Trust Exmoor
Wistlandpound
Kentisbury
Barnstaple
North Devon EX31 4SJ
Telephone: +44 (0) 1598 763221
Minicom: +44 (0) 1598 763221
Fax: +44 (0) 1598 763063
The Calvert Trust specialises in outdoor activities for disabled people.
Carers National Association
20-25 Glasshouse Yard
London
EC1A 4JT
020 7490 8818
0345 573 369 (Local rate number)
020 7490 8824
CNA is the national voice of carers in the UK. Our work involves raising awareness at all levels of government and society of the needs of carers and ensuring action is taken to support them, helping carers become more aware of their own role and status in the community and providing information, advice and support to carers, enabling them to make their own choices about providing care.
Centre for Brain Injury Rehabilitation and Development (BIRD)
131 Main Road
Broughton
Chester
CH4 0NR
0244 532 047
0800 0286256
01244 538723
BIRD is an independent charity providing treatment to improve the quality of life for people with brain injuries of all types and learning difficulties, irrespective of age or severity.
Centre for Neuro Skills
This is an American website which is full of helpful information about brain injuries.
Centre for Accessible Environments
Nutmeg House
60 Gainsford Street
London
SE1 2NY
020 7357 8182
020 7357 8183
info@cae.org.uk
An information and training resource concerned with improving the design of the built environment to accommodate the needs of all users, including the elderly and disabled people.
Child Brain Injury Trust
The Radcliffe Infirmary
Woodstock Road
Oxford
OX2 6HE
0845 6014939 (local call rate)
01865 552467
01865 552467
info@cbituk.org
The Child Brain Injury Trust (CBIT) aims to improve the quality of life for all children who have an acquired brain injury (ABI) and to enable them to achieve their full potential.
Communication Aids Centres
Assistive Communication Service
Charing Cross Hospital
Fulham Palace Road
London
W6 8RF
0181 846 1057/8
0181 846 7610
The Assistive Communication Service is an assessment centre for people who have difficulty communicating verbally, predominantly adults. The aim of assessment is to make recommendations and give advice on assistive communication systems appropriate to a particular person. Assessments are carried out by a specialist speech and language therapist and an occupational therapist when required. The assessments take place at the Centre or in the individual's own environment.
Court of Protection
Archway Tower
2 Junction Road
London
N19 5SZ
0845 330 2900
020 7664 7705
Crossroads Care
59 Melbourne Road
Coventry
CV5 6JN
02476 673242
Crossroads Caring for Carers
92 Banks Road
West Kirby
Wirral
CH48 0RE
Crossroads service is about giving time - improving the lives of Carers by giving them time to be themselves and have a break from their caring responsibilities. They aim to provide a reliable service, tailored to meet the individual needs of each Carer and the person being caring for and relieve stress in families or persons responsible for the care of disabled persons.
Disability Rights Commission
Freepost MID 02164
Stratford-upon-Avon
CV37 9BR
08457 622 633
08457 778 878
ddahel@stra.sitel.co.uk
Disabled Living Foundation
380-384 Harrow Road
London
W9 2HU
020 7432 8011
Disability Information Service
Dyslexia Institute
133 Gresham Road
Staines
Surrey
TW18 2AJ
01784 463 851
01784 460 747
info@dyslexia-inst.org.uk
Grafton Manor Head Injury Rehabilitation Unit
AMI Grafton Manor
Grafton Regis
Northampton
NN12 7SS
01908 543131
Rehabilitation for individuals following head injury. Also 5 day assessments to provide reports to support compensation claims.
Headway (National Brain Injuries Association)
4 King Edward Court
King Edward Street
Nottingham
NG1 1EW
0115 924 0800
Headway aims to support the head-injured person and relatives by helping in rehabilitation and providing social and leisure activities.
Migraine Trust
2nd Floor, 55-56 Russell Square, London, WC1B 4HP
020 7436 1336
020 7436 2880
The Migraine Trust is the UK's leading medical research and patient support charity for the condition. The Trust is committed to supporting sufferers and their families by funding and promoting research, improving diagnosis and treatment, providing information and advice, and raising awareness of migraine as a significant public health problem.
Motability
Goodman House
Station Approach
Harlow
Essex
CM20 2ET
National Brain Injuries Association (See Headway)
Official Solicitor to the Supreme Court
81 Chancery Lane
London
WC2A 1DD
020 7911 7127
020 7911 7105
enquiries@offsol.gsi.gov.uk
The Official Solicitor provides representation for minors or adults under legal disability, and sometimes others, in county court or High Court proceedings in England and Wales, and in the Court of Protection. The Public Trustee and the Official Solicitor can both act as personal representative of the estate of a deceased person and act as trustee of a trust.
Public Guardianship Office
Archway Tower
2 Junction Road
London N19 5SZ
0845 330 2900 (local call rate) 9am – 6pm, Mon - Fri
020 7664 7705
The PGO provides financial protection services for clients who are not able to manage their financial affairs because of mental incapacity. The incapacity may be related to an illness suffered by some older people (e.g. dementia), or the result of an accident or negligence (brain injury) or of mental illness (schizophrenia). We are here to support the families and advisers of the person who is incapable, often after someone has applied to the Court of Protection to manage the incapacitated person's financial affairs.
Rehab UK
Windermere House
Kendal Avenue
London
W3 0XA
020 8896 2333
020 8896 2444
Rehab UK provides assessment, training and development programmes that enable people with disabilities to break into the workforce. The organisation operates three brain injury centres - in Birmingham, London and Newcastle.
Rehabilitation and Medical Research Trust for Relief of Disability (REMEDI)
The Old Rectory
Stanton Prior
Bath
BA2 9HT
01761 470 662
01761 470 662
g.coles-remedi@btinternet.com
Royal Association for Disability and Rehabilitation (RADAR)
12 City Forum
250 City Road
London
EC1V 8AF
020 7250 3222
020 7250 0212
radar@radar.org.uk
RADAR is a national organisation working with and for physically disabled people to remove architectural, economic and attitudinal barriers.
Royal National Institute for Deaf People
19-23 Featherstone Street
London
EC1Y 8TT
0808 808 0123
020 7296 8199
helpline@rnid.org.uk
RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK.
Royal National Institute for the Blind
224 Great Portland Street
London
W1N 6AA
020 7388 1266
020 7388 2034
helpline@rnib.org.uk
RNIB is Britain's largest charity working with visually handicapped people. Its aim is to help blind people lead satisfying, fulfilled lives. Its aim is to prevent blindness and to raise awareness of the needs, ambitions and aspirations of people with visual handicaps. To this end it provides direct services, information and advice.
Scope (formerly The Spastics Society)
Head Office
6 Market Road
London
N7 9PW
020 7619 7100
0808 800333 (Helpline: 11am-9pm Mon-Fri, 2-6pm weekend)
020 7619 7399
Scope is a disability organisation in England and Wales whose focus is people with cerebral palsy.
The Injury Care Clinics Ltd
1 St George's Business Centre
Portsmouth
PO1 3EY
0239 283 6780
0239 221 9522
info@ticcs.co.uk
TICCS (The Injury Care Clinics) is a totally independent provider of treatment, rehabilitation and case management services and was founded with the sole purpose of providing support, treatment and effective case management to accident victims nationwide. TICCS offers a wide range of services all of which are independent and client focussed. TICCS does not provide reports to benefit the litigation process and will not accept instructions for medico-legal reports.
The Patients' Association
PO Box 935
Harrow
Middlesex
HA1 3YJ
08456 084455 (Helpline open 10am-4pm weekdays)
020 8243 9111
020 8243 9111
The Helpline can help by providing information on a wide range of issues, ranging from finding local support groups for certain medical conditions, NHS services and support groups to providing information on what patients are entitled to, making a complaint and listening to patients' experiences.
The Stroke Association
Stroke Information Service,
Stroke House
123 Whitecross Street
London
EC1Y 8JJ
020 7566 0300
The Stroke Association provides support for people who have had strokes, their families and carers. They campaign, educate and inform to increase knowledge of stroke at all levels of society. They run a national Stroke Information telephone helpline, provide publications and welfare grants. A networkof Regional Centres also offers education training and Information Services.
UK Acquired Brain Injury Forum (UKABIF)
Secretariat
C/o Royal Hospital for Neuro-disability
West Hill
Putney
London
SW15 3SW
0208 780 4569
ukabif@rhn.org.uk
The United Kingdom Acquired Brain Injury Forum (UKABIF) is a not-for-profit coalition of organisations and individuals that seeks to promote understanding of all aspects of Acquired Brain Injury and to provide information and expert input to policy makers and others to promote the interests of brain injured people and their families.